This was one of our opening exercises on Friday 29th. In pairs the group discussed the question and then made notes on post its. These were told back to the whole group after people had a chance to discuss.
These are the responses:
You should have a clear pathway, whatever caused your ABI including feedback. We should have an information directory. We should have joined up thinking- not bitty.
There should be further help to get into “Real Life” after being discharged.
“Better Expectations”- of what we can do- not being “written off”.
More help for the family.
Specific ethnic minority support.
To let brain injured people know what help is out there for them.
For services to know more about ABI.
Improving talking and listening in all services.
More help in the community.
Information Packs for all.
A 24 hour telephone helpline- specific to ABI (very much in the early stages).
A separation of Mental Health and ABI services.
Specialist Physiotherapists and Nurses who understand ABI.
Other Comments:
I would like to be remembered- not forgotten.
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